Showing posts with label language. Show all posts
Showing posts with label language. Show all posts

Tuesday, August 2, 2011

Top 10 Tuesday

Top 10 Favorite Words from Reid's Latest IEP

10. charismatic

9. initiator

8. seizes

7. leading

6. enthusiasm

5. contagious

4. kinesthetic

3. joyful

2. laughing

1. charismatic (yes, it was used twice)


I realize this is taking things out of context, but sitting there sharing a copy of "Present Levels" with Jim, I couldn't help but underline the words that popped out at me. This is our boy!

How wonderful to be around a table of people who notice, appreciate and acknowledge his strengths while they shore up his considerable deficits. Keeping the gifts in sight is what motivates us all, including Reid. As it's been said, we become what we focus on.

I wouldn't have imagined ever saying this but the morning after, I told Jim I wish those meetings were more often. To brainstorm and collaborate with people who care so deeply about Reid's future and work creatively and tirelessly toward common goals, was energizing.



Finally, brothers and sisters, whatever is true, whatever is noble, whatever is right, whatever is pure, whatever is lovely, whatever is admirable—if anything is excellent or praiseworthy—think about such things. Philippians 4:7-9


For as he thinks in his heart, so is he. Proverbs 23:7


And do not be conformed to this world, but be transformed by the renewing of your mind, so that you may prove what the will of God is, that which is good and acceptable and perfect. Romans 12:1-3

Tuesday, May 31, 2011

A New Car!

Standing in the Toyota Carlsbad used car lot, Jim tried to track the various specs our salesman, Mo, had committed to memory. Which Prius in the row was the best value for us? They honestly need a chart (or a website like CarMax). Without it, the oral recounting was as lost on us as the details of our genealogy.

Jim started to sound like a parrot, reiterating his own clarifying questions.

"How much is the that one again?"

"What was the mileage on the white one?"

"Has the black one been discounted yet?"

Each time we moved down the line to the next car, we lost site of the sticker on the previous one. It's a larger-than-life-size game of elimination. And that was before we got to my color preferences.

Reid must have been thinking this looked a lot like a rental car lot at any airport in the country. He knew what to do. Hop in, hang on, and start scoping out the glovebox.

As we'd piled out of Jim's MiniCooper, Reid opened the back door of the silver one right next to us, "I like this one. Let's go." (Come to think of it, that's the one we drove off the lot 2 hours later. Hmm..)

I was on Reid-patrol since Jim is the premier negotiator, "Well not yet, Reid. Dad has to talk to the man here and think it through. It costs a lot of dollars so, it might take him a little while." This is when the circular Q and A ensued.

That was our cue to search for a vending machine. Before we did, Reid put a hand on Jim's shoulder and came out with a phrase I imagine he must hear frequently at school, "Dad, are you having trouble making a choice?"


The kid speaks the truth...and keeps us laughing:)



I praise you, Father, Lord of heaven and earth, because you have hidden these things from the wise and learned, and revealed them to little children. Matthew 11:25


Who is the man who fears the LORD? He will instruct him in the way he should choose.
Psalm 25:11-13


Get wisdom—it's worth more than money; choose insight over income every time.
Proverbs 16:15-17

Monday, April 25, 2011

Easter People are Re-people

Reid has a keen eye for truth and excellent ears. As I clue into what fascinates him--be it a certain video clip or a song lyric--I find meaning. Either meaning that he has gleaned or a message he is attempting to communicate with those who will listen. Or both.

I am learning to interpret this more quickly and trust his "stims" as creative and intentional. Admittedly, it has taken me awhile. What can I say, I'm slow.

Over and over, I am reminded and convinced that "he gets it." Like yesterday in church, when he repeated the third sermon outline point to me as a command, "Stop doubting mom, and believe!"

He may appear tuned out in his own world but, in fact, he adeptly straddles two worlds as Lucy did Narnia and London. There are no coincidences. He is communicating truth in a unique way--both receiving and proclaiming it.

This day after Easter, may I present this explanation of the resurrection Reid-style?


(Click here for the video link if you're on Facebook.)

Distilling the gospel to its most elemental, it is a three part saga:

God created man to dwell with Him in Eden.

The serpent undermined His authority introducing sin.

Jesus came to be sin for us on the cross to reconcile us with God.

It wasn't until the jillionth time (I'm estimating) that this segment was rewound and replayed on our set, re-rented from the library and re-searched on Youtube, that I realized the beauty of it. Leave it to Reid to recognize truth "Between the Lions."

The celebration of Easter at its core is that we are re-people. Repentant, restored, reconciled, resurrected, rejoicing, reunited with our God. Happy Easter!!

Wednesday, March 2, 2011

In Which Self-Talk Reveals

Ok, this clip from Father of the Bride is more than just hilarious. I'm searching for it as I work on a book proposal recounting our April 2010 to April 2011 adventure as it relates to and requires a number of re-words. "Re: Re: RE: REID!" is my working title.

I needed to recall Steve Martin's choice list as he flounders to control the attack dogs:

Relent?
Recoil...
"I'm Relaxed..."
Reverse*
Release!


Much more on that later, but I happened upon something easier to tell in one sitting. You hear Steve Martin's self talk? As in numerous comedies, it is made audible in the movie for laughs.

"All I could think about was the size of this place...we coulda parked our whole house in the foyer..."

I live this brand of comedy daily. Reid lets us know exactly what he is thinking with an increasing amount of self-talk both at home and school. On the surface it is just one more "maladaptive" behavior to reckon with and raise concern. Looking deeper, the self-talk is actually worth much more than a few laughs.

Reid's externalized thought process literally reveals his motivations, where he's stuck, what challenge he's facing, and how hard he is attempting to do the right thing. It's a gift of revelation. A helpful tool in showing us how to set his potential free.

By talking to ourselves (albeit silently), don't we all process what is happening around us. We might encourage ourselves or beat ourselves up. Surely we prep up for the day's challenge over the coffee pot or in the closet choosing what to wear. Listen to yourself and take note of how much dialogue you have with yourself.

As I realize this, I am actually grateful that Reid's thoughts are as pure as they are. He sounds an awful lot like Paul in Romans ruminating over the battle between our old and new natures:


I do not understand what I do. For what I want to do I do not do, but what I hate I do.

And if I do what I do not want to do, I agree that the law is good. As it is, it is no longer I myself who do it, but it is sin living in me. For I know that good itself does not dwell in me, that is, in my sinful nature.

For I have the desire to do what is good, but I cannot carry it out. For I do not do the good I want to do, but the evil I do not want to do—this I keep on doing. Now if I do what I do not want to do, it is no longer I who do it, but it is sin living in me that does it.

So I find this law at work: Although I want to do good, evil is right there with me. For in my inner being I delight in God’s law; but I see another law at work in me, waging war against the law of my mind and making me a prisoner of the law of sin at work within me.

What a wretched man I am! Who will rescue me from this body that is subject to death? Thanks be to God, who delivers me through Jesus Christ our Lord! Romans 7:15-20

Sunday, February 13, 2011

Autistic in the spirit

An undeniable emptiness, I've felt before, came over me this morning. It's just Reid and me at home this weekend. Have you ever felt alone in someone's company? Hearing him hook up to the television--like an IV--I followed him downstairs feeling taken-for-granted, ignored, like furniture.

All he really cares about is that constant stream of visual stimulation. His assumption that I will always be here to provide basic wants and needs, is accurate even if hurtful.

I say "Good Morning" to no response. Until, "can you bring me hash browns?"

How many times do I wake up and the first thing I say to the Lord is, "Will you bless my day?" or some other thinly veiled demand for creature comfort. To some degree, we all go around idolizing our own pleasure, achievement, pastimes, or just our own navels. While God sits waiting for a heartfelt "good morning" connection.

God in Heaven continues to bless us but, you know all He really wants? Relationship! To have us come look in His eyes, play footsie, or otherwise give Him the time of day. That's all I want from Reid. Spent umpteen hours--his lifetime--and thousands of dollars trying to achieve it. To have him greet me
spontaneously, care what I think, want to sit with me or tell me about his day.

Maybe, just maybe, God's purpose in allowing autism is to illustrate the condition of our hearts toward Him in the spiritual realm. Can you think of a better way? Many of us are autistic in our spirits. No intervention the world offers can save us from ourselves. The reality of Reid helps me grasp the parallel and modify my own behavior toward God my Father in heaven.

If God loves me while I am yet a selfish sinner turning my back and gaze away from Him, then I can keep on loving Reid on the days he doesn't express any reciprocity. I see myself in him.

Sunday, February 6, 2011

Sing a New Song

I am the LORD, the God of all mankind. Is anything too hard for me? Jeremiah 32:26-28


He put a new song in my mouth, a hymn of praise to our God. Many will see and fear the LORD and put their trust in him. Psalm 40:2-4


Almost every Sunday morning as we coast the 2 miles downhill to church (coffee or smoothie in hand), Reid breaks spontaneously into a praise song. (His memory for lyrics is astounding, not to mention the artist who's recorded it and what track it is on which of their albums.)

Eight times out of 10, the song Reid picks en route ends up being on the church bulletin that very Sunday! It's uncanny. This didn't dawn on me at first but, it has happened enough now that I am quite sure of the correlation. (All of us learn through repetition.)

Last week, he and I drove alone so instead of the usual foursome belting out the prophetic pre-worship selection, I was able to ask him, "Reid, how do you think of what song to sing in the car?"

After the usual pregnant pause I offered, "Does the Lord tell you which song?"

Immediately, "Yes the Lord gives it to me."

Is anything too hard for the Lord? Even if we struggle to communicate with ones profoundly language delayed, the God who made us all in His image, has a way.

As Hans Christian Andersen said, when words fail, music speaks. Music is the language of the soul, as another blogger points out.

Karen Kingsbury's fictional book, Unlocked, gave me much food for thought. She portrays Holden, a teenager with autism, with a close friends who unlocks his potential as well as the meaning behind some of his self stims. When he rocks, he is interceding for classmates.

I wonder if we gave our guys more credit for having spiritual gifts and disciplines, if they would grow into maturity?

Might we too, as they teach us in the process?

Tuesday, January 18, 2011

Top 10 Tuesday

Top 10 Reasons to use Dignifying Language about those with Autism
(or any disability)

10. We are more alike than different

9. We are all disabled somehow

8. You likely love someone on the spectrum since it affects 1 in 95 children

7. You wouldn't want to offend someone in the room

6. We are all made in God's image

5. The Golden Rule is to love your neighbor as yourself; it's how you'd want to be treated

4. Words change our perception of others

3. People meet the expectations we set for them; your words impact another's identity

2. A person is a person; a soul is a soul

1. You have influence over others


Of course this begs the question: What is dignifying language? Kathie Snow at Disability is Natural has ammassed a wealth of articles here that define people-first language quite well.

John Tomkins work in developing Green Language is also excellent. Exploring his site for a couple minutes makes you mindful of your tongue in new ways. There are many ways to interact with his site, games for kids, and explanations of how our brains react to language and how words lead to behavior. We can all improve on this. And it's a matter of life or death according to the Bible.


Words are powerful; take them seriously. Words can be your salvation. Words can also be your damnation." Matthew 12:33-35 The Message

Words kill, words give life; they're either poison or fruit--you choose.
  1. Proverbs 18:20-22 The Message

Kind words heal and help; cutting words wound and maim.
  1. Proverbs 15:3-5 The Message

Sunday, January 16, 2011

New Reaction to an Old Circumstance

Reid knows his way around a library (and a Friends of the Library book sale room). In his zeal to scan their selection of outmoded, bargain VHS tapes yesterday, he bumped into one of the volunteer workers. And directed her to "Move."

Immediately on his heels, I prompted him with a more polite alternative,"Excuse me please. I can't see the videos on that shelf." Lest she think I was unfamiliar with current social mores, right?

Shifting her puzzled gaze from me to him and back to me she retorted, "Thank you mom." I simply smiled in love, resisting the urge to correct her with "I'm not your mother."

Reid, my quick study, was off to the workroom asking the rest of the staff for the particular episode of Between the Lions he came in search of. Only then after additional observation the woman declared, "Oh, I see he has problems."

There was a day when that would have made my blood absolutely boil in anger, embarrassment, and protest, but not today. I truthfully and outloud replied, "No, just opportunities."

Opportunities for all of us. Reid has opened more doors for us than I can count.





A huge door of opportunity for good work has opened up here. (There is also mushrooming opposition.) 1 Corinthians 16:4-6 The Message

God went for the jugular when he sent his own Son. He didn't deal with the problem as something remote and unimportant. In his Son Jesus, he personally took on the human condition to set it right once and for all...simply embrace what the Spirit is doing in us. Romans 8:2-4 The Message

Tuesday, January 26, 2010

Top 10 Tuesday

Top 10 Reid-isms that Make Me Smile


10. Don't be shy.

9. Do you have a neck?

8. Nah,na,na,na,na,na,na, na, na, na, na, na, noh! (Staccato)

7. You better _______(fill in directive) or you'll be on the stairs

6. What is your favorite movie of all time?

5. Give me a hug, you big lug.

4. That deserves a reward.

3. We need a van-cation!

2. I'm ready for my movie pay-off

1. Have it all you want, sister!


In the privacy of our own home, they crack me up every time. Outside the home,
in the glaring public eye, a few may require explanation. How many times have I
wanted to respond with Mary Poppins' aplomb, "First of all, I would like to make
one thing quite clear. I never explain anything!"

Since all roads lead to (or from) movie talk, I ought to attribute #10 to Cassie in
Dragon Tales, # 1 to Travis in Old Yeller, #5 to Between the Lions,#4 to a teacher
at school and #7 to dear old mom and dad. Reid has appropriately transferred
them to multiple real life settings though, like when he shares a stick of gum with
Allie (#1), when cousin Will began to negotiate with his dad last summer on vacation
(#7), or when he clears the dishes after dinner (#4).

The boy has a way with words.

Monday, May 11, 2009

Everyday is Mother's Day





Anita Renfroe, a stay-at-home mom turned youtube phe-mom-enon, captures one facet of motherhood that does seem to be universal: our tendency to remind with cliche comments. Judging from the erupting ovation at the end, everyone can relate to her tongue-twisting litany of phrases that our mothers used, that even we are tired of saying but are somehow unavoidable. Certainly, our family must have tuned them out in daily use!

Imagine for a moment how often and by how many different support people, our kids with autism are subjected to these and more "helpful" reminders. Is it any wonder so many of them develop aggressive tendencies as well? It must be a torture akin to hearing the William Tell Overture ringing repeatedly in your eardrums throughout your waking hours. For each of your IEP goals, to be prompted by every therapist, aide, and case manager who hovers over your shoulder, "what do you say?" "use your words," "hands by your side," "quiet hands," "regular voice," "no talking," "personal space," "do it the fast way," "how do you ask?" One begins to see the benefits of sign language and hand signals very quickly. Or PECS. Spare me the constant drip, drip, drip.

Let's get 'em all out there! What phrase has become a noisy gong at your house lately?


If I speak in the tongues of men and of angels, but have not love, I am only a resounding gong or a clanging cymbal. 1 Corinthians 13:1-3




A quarrelsome wife is like a constant dripping on a rainy day; Proverbs 27:14-16




I consider it right, as long as I am in this earthly dwelling, to stir you up by way of reminder, 2 Peter 1:12-14

Tuesday, October 28, 2008

Introvert or Extrovert?

Where do you sit at church? Back, middle, or front? Side, center, or balcony? I personally have always chosen the side, middle. We have parked in the same section, if not the same pew, of our church for about 17 years with only minor variation. People know where to find us. I am always flabbergasted when someone says, "Haven't seen you in awhile. Where have you been?" Same place.  I know exactly where I've been (out of view from much of the congregation). Every single Sunday, we're there. Not hiding, just out of view, around the side.  This choice of seating becomes convenient if we need to bail out with Reid. Our little nook offers security should any of a number of inappropriate behaviors flair up mid-sermon; we are not as disruptive to as many people.  It makes perfect sense now but, what I'm not divulging is that we sat there way before the kids were born--just a few rows up.  Go figure?  My theory on pew selection is that it loosely correlates with introversion and extroversion.  (I have no link or research with which to substantiate that.)

It's not that I wear the pants in the family.  I think the rest of my crew have just followed my lead all these years, in this one area. Not last night. Jim is out of town so the kids and I slept through the morning service which meant defaulting to the 5:45 evening service. That change of routine in itself is enough to shake up the seating, right? The lighting and sound are also different which make our usual side transept seem more remote than secluded.  

Reid was in rare and wonderful form for some unknown and unpredicted reason. He bounded out of the car, up the patio stairs, waving hello to everyone as if he were a former pastor back from sabbatical. Calling everyone by their full names, he zoomed his beeline for the sanctuary. "Hello, Paula Mazza!" "Hello, David Hall!" (the band director at Allie's old school).  His quirky habit of using full names is based partly on hearing me refer to people and partly on seeing them in print.  If he's ever seen your name listed on a recital program or church bulletin, it is emblazoned on his memory in that exact typeset configuration.  As a result, he feels quite close to the headliners, and goes straight to the top of any organization.  He associates with the conductor at a concert--not the ushers; the senior staff of the church--not volunteers; the manager of the restaurant--not busboys!

It gave me pause to watch him have a complete conversation with the sound engineer, our new best friend since he recorded the Kingsmen band's first CD last week.  His employment of these ordinarily basic skills is akin to pulling out the wedding china and good silver.  It was rare indeed, to see them in everyday use. He approached Chris with a glowing smile and friendly touch, "Hi Chris Hobson. Remember you recorded the Kingsmen?  That was so fun! Right up there (pointing)...on Monday.  This is going to be the best service ever!! (fists clenched in glee) Mike McClenahan is preaching on the Splash series.  I can't wait!!! (quivering)"  All that was delivered in elevated pitch and speed with some overflow of motor movement, as a team of professionals could point out. Whatever*!#.  It was relational, warm, genuine, and reciprocal in my book!  

On and on he went as Allie and I sat unobtrusively in the darkened center, middle.  Where he stopped was in the second to the front row, center! "I want to sit next to Pastor Josh," he announced."  "I am way out of my comfort zone," I thought to myself.  Good thing I can fake otherwise.  We moved up and sat within the cluster of pastors presiding.

Like a cake is 3 parts flour and 1 part sugar (with some butter and egg thrown in for good measure), our kids are a couple parts diagnosis and a couple parts temperament.  It can be very hard to separate one from the other.  Where does a stubborn strong will stop and non-compliance begin?  When does over-sensitive become tactile aversion?  How can one distinguish manipulation from inability?  If you can answer these questions, you should really take up the fine art of early childhood diagnosis.  If not, join the club.

All I know for sure is, despite his significant language, social, and behavioral challenges, my son is an extroverted, gregarious, young man who loves people and has a mind like a trap.  I am so proud of him.  And secretly, I have come to love the tension in that, the irony, the oxymoron, and the element of surprise.



Let your conversation be always full of grace, seasoned with salt, so that you may know how to answer everyone.  Colossians 4:5-7


I hope to see you soon, and we will talk face to face. Peace to you. The friends here send their greetings. Greet the friends there by name.  3 John 1:13-14



For where two or three come together in my name, there am I with them."  Matthew 18:19-21


photo credits: www.wholefoodsmarket.com, www.aolcdn.com

Wednesday, September 17, 2008

It's Like This....

Kristina Chew at Autism Vox shares several poems by author and autism mom, Barbara Crooker. One of her most recent poems in the book Line Dance, entitled Simile, reminds me of one of Reid's all time favorite board books, Quick as a Cricket. It is one of a scant hundred we are scheming to present to Little Guy Wood, Carla's baby boy arriving in December. The catch is, Reid still loves them so much he absconds with the new copies as fast as I can hide or wrap them. He is futiley trying to convince me to give his ripped, stained, and cherished original copies to the baby, who "can't read yet anyway." He's got a point. There are worse obsessions!

Anyway, Audrey Wood's classic was one we used to build an emotional vocabulary of adjectives when Reid was younger. He still fancies the metaphors and visual imagery that depict moods including, "shy as a snail," "large as a whale," and "tame as a poodle." Have you seen the PowerPoint image Temple Grandin uses to convey her childhood sensory experience with toilet paper? Scratchy as sandpaper. I couldn't find it online but here is a similar representation. Similes are quite effective. Barbara Crooker's son coined the phrase, "mad as a tea kettle" which is vividly descriptive despite his teacher's redlining it.






Simile
My son showed me his paper from remedial
English; he was supposed to fill in the blanks.
Cool as a __________.

Smooth as a __________. Neat as a _____.

He came up with: angry as a teakettle

and when I asked, “Why?” said,
“Because it was boiling mad.” Of course,
it was marked wrong, one more red mark
in his life’s long test.


When I called from Virginia to ask him

what he did last weekend,
he said, “We bought Italian salad dressing.”

Last fall we went to a Broadway
play; what he liked the most
were traffic lights and Don’t Walk signs.

Of, my little pork chop, my sweet potato,
my tender tot. You have made me pay attention
to the world’s smallest minutia. My pea-shaped heart,
red as a stop sign, fills with
the helium of tenderness, thinks it might burst.

from Line Dance (Word Press 2008) by Barbara Crooker



God's Word is full of similes. Spiritual concepts are the hardest ones for us to grasp whether we are autistic or neuro-typical or gifted. Scripture comes the closest to conveying the abstractions of God, His heaven, and His immense love for us since it is, in itself, God-breathed through the Holy Spirit exclusively for our limited, finite, and human understanding. The Lord has done His part by putting it into our language and our individual learning style with factual accounts, visuals, parables, timelines, and even poetry.



Let my teaching fall like rain and my words descend like dew, like showers on new grass, like abundant rain on tender plants. Deuteronomy 32:1-3

Man is like a breath; his days are like a fleeting shadow. Psalm 144:3-5

For a thousand years in your sight are like a day that has just gone by, or like a watch in the night. Psalm 90:3-5

A word aptly spoken is like apples of gold in settings of silver.
Proverbs 25:10-12


A quarrelsome wife is like a constant dripping on a rainy day
Proverbs 27:14-16

For the word of God is living and active. Sharper than any double-edged sword, it penetrates even to dividing soul and spirit, joints and marrow; it judges the thoughts and attitudes of the heart. Hebrews 4:11-13

photo credit:
5x6csa.com