Tuesday, March 15, 2011
My Poor Lucky Dog
Tuesday, February 2, 2010
Let the Good Times Roll
Reid is acing his move to the Adolescent Program at his school. Yesterday marked his first full day upstairs with a new Case Manager and several new teachers. This very intentional, gradual transition has been orchestrated over the past 6 months. With his Student of the Week certificate from downstairs still in the backpack, he was ready!Monday, November 2, 2009
Eyes on the Shepherd
I am not very athletic. I am however, competitive.


Each one should test his own actions. Then he can take pride in himself, without comparing himself to somebody else, Galatians 6:3-5
As long as Moses held up his hands, the Israelites were winning, but whenever he lowered his hands, the Amalekites were winning. Exodus 17:10-12
I press on toward the goal to win the prize for which God has called me heavenward in Christ Jesus. Philippians 3:13-15
Am I now trying to win the approval of men, or of God? Or am I trying to please men? If I were still trying to please men, I would not be a servant of Christ. Galatians 1:9-11
Monday, April 20, 2009
Oh the Places You'll GO!
This family has gone over the hills and far away, to love their son and come to a place of accepting who he is even if it means embracing autism. Many phrases come to mind, "Whatever it takes," "what we'll do for love," and the one I hear recurrently from well-meaning friends, "I don't know how you do it." There were days, many moons ago, that honestly, I didn't quite know how I was doing it either. But what the Bible says is true, God's grace is sufficient, and we do.
So go with me here, if the strength to do what God calls each of us to do--be it autism or any other life circumstance--is not our own but His, then it doesn't matter who we are, but whose we are. If we are drawing from the same source, then any one of us could do it if we had to. Which is now my standard reply to that comment, "You'd be surprised what you can if God calls you to it." God's immeasurable grace and riches are of infinite supply. Many of us parenting autism, find new reserves of energy, creativity, stamina, and patience because God has allowed autism in our lives. What's so bad about that?
I do not wish to perpetuate the myth that these far flung adventures have any credence or magic power in and of themselves. Whether swimming with dolphins, racing with horses, or listening ad infinitum with headphones, I think the true value is in the journey not the destination. The journey for the parents is one of learning to relate differently and to accept (not change) their child. The parallel journey for the child is to discover who they are and where they fit in the world and how to trust. Having to go to greater lengths to do this with children on the spectrum, many parents demonstrate over and over again that love is the greatest motivator.
Is there a more powerful example than the cross? For God so loved the world that He gave His only begotten Son, that whoever believes in Him would have eternal life. The Easter message is one of sacrificial love. Jesus, who is love, was motivated to go where no man has gone--literally to hell and back--to save you and me from a fate worse than autism.
When we do anything resembling that, whether by affording some outrageous therapy, homeshooling 'til we don't recognize ourself in the mirror, or driving illogical distances to a qualified therapist, we are following Christ, sharing in his suffering, and becoming more like Him. Go ahead and spill yourself out for someone you love; you're in good company even if the world doesn't understand.
The book, The Horse Boy was released April 14th. The British family is described here in an article in the Telegraph and the trailer of the subsequent movie as well as the movie website here. Their journey makes a fascinating story. Admirably, the family has taken the proceeds of the book and started The Horse Boy Foundation and ranch outside of Austin. If you go there, know that you take your own therapists, your own child, and do your own thing with their horses and premises. They don't have a magic bullet or even much staff; you must come to your own terms with God's own will for your own life and family. No one can do that for you.
Don't all run off to Siberia or Austin, but do lend an ear to your child's unique pulse today and tune in to how God is calling you to love.
Dear friends, let us love one another, for love comes from God. Everyone who loves has been born of God and knows God. 1 John 4:6-8
There is no fear in love. But perfect love drives out fear, because fear has to do with punishment. The one who fears is not made perfect in love. 1 John 4:17-19
As a prisoner for the Lord, then, I urge you to live a life worthy of the calling you have received. Ephesians 4:1-3
The one who calls you is faithful and he will do it. 1 Thessalonians 5:23-25
Saturday, February 21, 2009
Starfish, Starfish wonder what you are...
starfish starfish wonder what you are fish
time and tide go washing by and
you don't even care
peaceful creature come and be my teacher
flotsam, jetsam swish and swirl.
I'm not saying I remembered all those lines at the time and obviously I got my sea creatures mixed up. Not until I sit to write this, did it dawn on me that I found a sand dollar not a starfish....pshchw details! Treasure is treasure and I don't happen to know a sand dollar song! Do you? The tune put me in mind of the book, One Small Starfish by Anne Addison which is excellent resource...which led me to...the mind races so fast from one thought to the next, you know how it goes. Soon the the ideas turn into ones that you know aren't your own. They take on a symbolic, metaphoric, distinctly divine quality.
The thoughts flooded so fast I could identify them as from God. I can't fabricate ideas that quickly let alone spell them out in words. I have learned to run my thoughts through two filters in order to prove them of God. First, do they correlate with Scripture? Second, do they agree with His nature? If yes on both counts, then I take it as from God to me. If no, then the voice could be my own or that of the enemy. Indeed, these sounded like His voice.
What a glorious, sunny, low tide shore! No question, I'd found a whole sand dollar. Stoked, I turned it over in my hand to see the underside. Despite it's unquestionable wholeness, it had a definite dent. Not broken or cracked, just pushed in...wow...almost as if it were an organic 3-dimensional model of the top down SPECT scan view of Reid's brain I had just reviewed with a third psychiatrist. Smack dab in the right front quadrant was this considerable impression. Hmuh?...an uncanny representation of the white hot, overactive spot that makes his scan resemble a stop action photo of fireworks lighting up a July sky. The hot spots, otherwise referred to as a "ring of fire," were top priority to treat. This little gem of a sand dollar reminded me of my fearfully and wonderfully made boy in a split second. He is an incomparable find...placed in my path...specifically for me...unique, beautiful and whole...impressive and impressionable...that, like the sand dollar, arrived smaller than average.
Hmmm...keep them as a sign...of this push and pull dynamic that is perpetual for mothers...like letting out and reeling in the line of a kite. Relinquishment and responsibility. How many times have I revisited this parenting topic? When will I have done it sufficiently and in a healthy way without one ounce of rationalizing? In my head, I know the goal: our kids are not our own; they come from God; they are arrows in our quiver to be sent forth; ours for a time to prepare for independence. Heart knowledge is a different matter.
How many layers must there be to this teary onion? I have released my kids multiple times and in myriad ways, yet still I catch myself with hands grasped figuratively, hanging on with a comment, or controlling through an expectation. Am I hoarding my kids as treasures or sending them out for the glory of God?I gave Reid the middle name of Samuel knowing full well the story of Hannah's infertility and her bargain with the Lord if He remembered her. Like Sarah, I named Reid Samuel because "I asked the Lord for him." But could I also "give him over to the Lord for his whole life" like she did? Not exactly. I could barely send him to school at age 13, let alone leave him to be raised by priests. I recall a relinquishment prayer exercise embedded in Catherine Marshall's book, Adventures in Prayer? More than once, it has been an issue for me.
Clearly, relinquishment is more a process than an event. At first blush, it sounds like turning someone over to the wolves. As an adoptive mom, it also smacks of the dreaded rejection curse which has deep roots we don't want to dig up (let alone reinforce in anyone's spirit). The nuances of it though, involve trusting people and powers outside myself. As a special needs mom, I have done significant mental wrestling before trusting nursery workers to love my child, Sunday school teachers to accept his quirky behaviors, an audience at Borders to receive his singing well, neighbors to figure out how he's different, playmates to perceive his ill-expressed intentions, teachers to be insightful, wise, and responsive, babysitters to be of good character, even family to expand their minds and hearts. So it is, that relinquishment and trust are inextricably linked.
For Reid to ever have hope of an independent, full life (that remotely resembles his sister's), I have to squelch my own internal control freak and let go of protecting him, speaking for him, answering for him, meeting all his needs. I need to trust numerous others to stand in those gaps. Sounds easy enough but is hard with a child who has unpredictable development and neurology.
During a season of perpetual anguish when I was exhausted and unsure how to help Reid or k
now what to do next, I sought healing prayer for both of us. I envisioned myself helpless on a shore and described Reid as a boat floundering at sea in high winds, adrift without a rudder at the whim of a raging storm. Truthfully, at that time he had little control over his own body or mind--the embodiment of vestibular anarchy. The answered prayer came not as a solution or reply but as a picture of Jesus with him in the boat. Much like the disciples in Mark 4, Reid was and is and actually will be fine because of that single fact alone. Jesus is with Him. Can I yield to that? Can He be trusted?Jesus Himself was in the stern, asleep on the cushion; and they woke Him and said to Him, "Teacher, do You not care that we are perishing?" And He got up and rebuked the wind and said to the sea, "Hush, be still." And the wind died down and it became perfectly calm. And He said to them, "Why are you afraid? Do you still have no faith?" Mark 4:37-39
"...the LORD was not in the wind. And after the wind an earthquake, but the LORD was not in the earthquake. After the earthquake a fire, but the LORD was not in the fire; and after the fire a sound of a gentle blowing. 1 Kings 19
The LORD himself goes before you and will be with you; he will never leave you nor forsake you. Do not be afraid; do not be discouraged." Deuteronomy 31:7-9
www.pacificwilderness.com, www.donnan-family.org.uk/
Thursday, September 18, 2008
Rescued!
Have you seen Walter and Christopher Marino in the news by now? This unbelievable story of a father and son drifting out to sea for some 12 hours and surviving to tell about it brings many things to mind for me: Reid's love of water; the therapeutic value of water; the false sensation of comfort that floating offers; the benefits of knowing what motivates your kids; the power of staying engaged with them through thick and thin; the absolute might of the ocean; the uncertainty of life; the redeeming value of movie scripts; the universal will to live; and of course above all, God's sovereignty.It to me seems that our kids have swarms of guardian angels hovering around them. I know Reid has darted through some gnarly encounters unscathed. Thus far, the Lord has honored my regular prayer that Reid would have a hedge of protection around him. Since they were babies, both my kids have had a small, plaster angel cherub hanging over their bedroom door from a ribbon. On the ribbon is handwritten the "911" code verse, "For He will command his angels concerning you to guard you in all your ways." Psalm 91:11
Enough harrowing experiences have brought me coronary distress, that people now quizzically wonder how I appear so calm. "Practice," I say without eye contact, for I have not the luxury. My eyes are always on the make for my flitting butterfly who has not yet been stung by near misses either crossing a street or riding a bike( in the center lane up to our pool in stubborn refusal to ride single file along the curb). Lost at Target; lost in the neighborhood; lost in the local county park; lost at the Tate Museum in London, Reid is found every time but, not always in short order. My knee jerk reaction now is to pray and to enlist Allie. She or I always find him. Even when we alert the authorities, it is usually her sixth sense that reveals his mystery location. And usually there is a logical explanation which we decipher after the fact when my blood pressure returns to its normal low.

The most frightening situation to date was this summer in Cape Hatteras when Reid opened a moving car door and bolted across Hwy 12, an infamous single lane freeway, in an irrational tirade. How he did not get creamed into the concrete I will never be able to explain outside of God's grace.
Watching the Marino family interviewed brings tears to my eyes, tears of recognition and empathy for the complexity of their emotions and their daily reality. Siblings rock. Good for his sister, Angela, for knowing when to call the earthly 911. Good for the insightful anchorman for crediting her and using people-first language addressing Christopher by name.
Living near the ocean makes me acutely aware of its beauty and its danger. The ocean is so like its Creator. I love the ocean. And I fear the ocean. I am in awe of the ocean. Those are concrete realities. In a similar way, I love and "fear of the Lord." Just this past summer, I was momentarily caught in a riptide and surprised by how quickly I panicked. A week later, an avid boogie boarding friend of mine had to be rescued by a lifeguard in front of her 2 teenage daughters. In addition to being embarrassed, she was really frightened. Afterward, we commiserated over all that flashes before your eyes in a moment "at sea." I cannot begin to imagine the hours at sea that the Marino's endured.
I am also touched by the dad's flood of gratitude. Do we express equivalent joy and exuberance on Easter morning (or daily, for that matter) at the promise of being rescued from eternal death? One day we will know exactly how he felt. Jesus, not the Coast Guard, saves us all from the clutch of death.
That if you confess with your mouth, "Jesus is Lord," and believe in your heart that God raised him from the dead, you will be saved. Romans 10:8-10
"Because he loves me," says the LORD, "I will rescue him; I will protect him, for he acknowledges my name. Psalm 91:13-15
Reach down your hand from on high; deliver me and rescue me from the mighty waters, from the hands of foreigners. Psalm 144:6-8
From six calamities he will rescue you; in seven no harm will befall you. Job 5:19
The angel of the LORD encamps around those who fear him, and he delivers them. Psalm 34:6-8
photo credit: www.scienceimage.csiro.au/mediarelease/images/open_sea_sm.jpg, wwwcache.wral.com

