Showing posts with label holidays. Show all posts
Showing posts with label holidays. Show all posts

Friday, December 12, 2014

Do Tell! Sensory Integration at Christmas

Resurrecting a recurrent feature today because sharing stories is a healing balm.

C.S. Lewis wrote, "We read to know we're not alone." I need to tell my story and I'd love to hear yours. Here's a question I bet you can answer with at least one example. Be practical, be personal, be painful, be my guest...

Do you have a Christmas tradition that accomplishes sensory integration?


Every year we buck the Norman Rockwell tradition and pile into one of our Priuses bound for our nearest Home Depot to pick out the freshest, tallest, cheapest evergreen tree we can possibly find. Inevitably rubbing shoulders with a few friends in the serpentine line, it is a seasonal sensory treat, even if it's not as picturesque as winter in Chagrin Falls or New York City.


Reid makes a beeline for the corner of the nearest corral, crouches down low and crawls into the crevice created beneath a pile of bound and bagged pines. That is sensory integration at its best; a squeeze machine and aromatherapy all rolled into one. He breathes frasier fir in sensurround. The needles surely prickle or scrape his face and hands; a little sap on the fingertips is free for the taking. The distinctive sounds of backing forklifts, buzzing chainsaws, and busy consumers ring in his ears until a familiar alarm goes off across the lot: "Reid, say 'here I am!"


"Here I am."

"Aha."

"Mom, I was hiding."

"I know you like to do that. Doesn't it smell so good?"

We load our tree into the hatchback along with armfuls of free boughs and breathe deeply the whole way home. All this--a rich, sensory diet--for way less than the going rate of an occupational therapist. I'll take it!











Monday, April 25, 2011

Easter People are Re-people

Reid has a keen eye for truth and excellent ears. As I clue into what fascinates him--be it a certain video clip or a song lyric--I find meaning. Either meaning that he has gleaned or a message he is attempting to communicate with those who will listen. Or both.

I am learning to interpret this more quickly and trust his "stims" as creative and intentional. Admittedly, it has taken me awhile. What can I say, I'm slow.

Over and over, I am reminded and convinced that "he gets it." Like yesterday in church, when he repeated the third sermon outline point to me as a command, "Stop doubting mom, and believe!"

He may appear tuned out in his own world but, in fact, he adeptly straddles two worlds as Lucy did Narnia and London. There are no coincidences. He is communicating truth in a unique way--both receiving and proclaiming it.

This day after Easter, may I present this explanation of the resurrection Reid-style?


(Click here for the video link if you're on Facebook.)

Distilling the gospel to its most elemental, it is a three part saga:

God created man to dwell with Him in Eden.

The serpent undermined His authority introducing sin.

Jesus came to be sin for us on the cross to reconcile us with God.

It wasn't until the jillionth time (I'm estimating) that this segment was rewound and replayed on our set, re-rented from the library and re-searched on Youtube, that I realized the beauty of it. Leave it to Reid to recognize truth "Between the Lions."

The celebration of Easter at its core is that we are re-people. Repentant, restored, reconciled, resurrected, rejoicing, reunited with our God. Happy Easter!!

Saturday, December 18, 2010

Sing, Sing a Song, make it anything

Scene from Elf:



Scene at our House:

Mom (from bottom of stairs in a sing song voice): "Good morning, good morning, good morning; it's time to wake up; it's the last day of school before break; it's your day to swim at the Plunge; it's time for breakfast so you don't miss the bus..."

Reid (from upstairs on his feet, entering bathroom): "Stop singing Mom."


The good news: Music motivates. He got up.
The bad news: I do not have a hit single on my hands.

Thursday, November 25, 2010

Colloquial Vocab

Who doesn't have vocabulary development on their IEP? Like greetings, increasing vocabulary has been one of Reid's goals for more than a decade. Lately though, his gains in other areas make this one simmer to the top like grease on the top of the turkey soup--ready to be skimmed off.

With new vigor I am explaining idioms and narrating each drive in the car as if I were a thesaurus on audible.com. I have a Word-a-Day tear off calendar in mind for under the tree. (Shhhh...) Grateful for good training from so many speech and language pathologists, we are "emphasizing new words in conversation and generalizing them to various settings. This becomes habitual after years of practice, but we can all use a refresher right?

Several times lately, Reid has asked me, "what does ____ mean?" This is quite an exciting developmental milestone at any age. Last week, Jim was out of town for a night, which was occasion enough for Allie and I to watch Sleepless in Seattle. Catching wind of this plan in one of those running monologue car rides, Reid inquired, "what's a chick flick?" I gave what I thought was an adequate explanation. That is now debatable.

At our house, Reid customarily "does the controls," meaning he holds the remote, cues up the DVD's, introduces the film, and adjusts the volume. Electronics are totally his department. Even if he walks out in the middle of a film, when those credits roll boy, he never fails to bolt back down. With a flourish he insists he must "do the honors," eject the disk, and close up shop. So it was tonight, after a peaceful Thanksgiving day, that he rejoined us for the summation of the movie Elf. As he turned the power off he delivered the punch line under his breath, "That was a good chick flick."

Jim and I chuckled in cahoots later...a chick flick...compared to what? Bourne Supremacy or Barney? We'll keep working on that goal....progress noted.

Wednesday, November 24, 2010

Lending and Borrowing

"Good Morning Andrea. This is Kay down at the Solana Beach Library."

They open early the day before Thanksgiving I thought, expecting it to be my mom gobble gobbling on the other line.

"Oh hi Kay, how are you?" I'm on a first name basis with many of our local librarians, as previously mentioned.

"I'm fine, but I should be asking, 'how are you?' Well, listen, we're having kind of a slow day down here...going through some lost and found...and we have a darling photo album with pictures of your family from Christmas 2009...I have no idea how it got here but you know...sometimes things have a way of getting shoved back behind on the shelves....." (gobble gobble)

"I know exactly how it got there...and yes, I'll be right down to get it. Thank you!" Those glossy coffee table albums cost me some time and coin to make.

Grateful for Reid's share and share alike attitude. Grateful they didn't catalogue it for general circulation among my neighbors. Grateful they know us and took the time to call. Grateful to have it back.


P.S. Which Dewey decimal classification do you suppose it would fall under? Social Science...Biography...Arts & Recreation...History

Tuesday, December 22, 2009

Top 10 Tuesday

Top 10 Ways to Engage Reid over Break


1. Take a bike ride

2. Go for an ice cream treat

3. Have talk time

4. Play flashlight tag

5. Play charades

6. Decorate the Christmas Tree

7. Do a Trampoline Show

8. Cook together - cookies, pancakes, roasted potatoes; let Reid choose

9. Play a board game

10. Watch his favorite program together then your favorite program together

I'll confess to not writing this myself. My mom did, anticipating her arrival in our home for Christmas. It means the world to me--and can lift me out of the deepest despair--that she puts her love for Reid into action. She values his role in family enough to invest the extra time, patience, and effort it takes to engage him in something other than tv viewing--the ultimate holiday cop out.

I can totally identify with the dread that came through in several comments to "Do Tell" a couple weeks ago. There is nothing restful about having to recreate the structure of his school day. If we slack off, we pay.

My mom also loves me and shows it with acts of service that relieve the burden of feeling like I have the kid "only a mother can love" at times. Especially times of increased expectations for hostessing and cooking and relaxing--all of which I enjoy--but have to measure against the pang in my gut that comes from neglecting my child's extensive needs and "program." Have you ever felt like a one-armed paper hanger...who's out of glue? I'm not saying it's impossible. I'm just saying he'll need help!

And because she's also an achiever, these came in a subsequent email:

11. Plan a Talent Show in which EVERYONE must participate.
12. Is the Country Club swim pool open? Hmmm.

Friday, December 4, 2009

Do Tell!

It's me again, wanting to know your innermost thoughts.

The holidays are upon us with all they entail. I thought it was genius to get our tree up while the in-laws were still here to help. Not sure they agreed but, it did set the stage for an evening of fireside charades and flute serenades. Everyone was supposed to put on 10 ornaments before they left the room. Let's just say, compliance was an issue.

Nonetheless, a record was set; we were decorated to the hilt before the calendar turned to December. Only the most observant neighbors will notice the odd strand of blinking lights on the balcony; only Allie knows how to regulate the highest string of tree lights so they do not strobe. I love that she turns them on every morning before I come down.

You first this Friday...

Is there something you dread about the holiday season?

Monday, November 30, 2009

Parents Rule!

Kids drool? well, not exactly.

On an hour respite from a trying Thanksgiving weekend, Allie, Kat and I discovered these bracelets. We each picked a different inspirational mantra that suited us perfectly. They seemed custom made expressing our individual approach to all that life was dishing out in the moment. The serendipitous finding buoyed us through the rest of the day affirming our particular piece in the family puzzle.

Allie's says this:













Kathryn's said "Don't Settle for Less."












and mine:













Riding out a wave of medication, scary behavior, and holiday expectations had me feeling like the kindergarten Dutch boy with his finger in the dike determined to hold back the sea. Impossible and solely my responsibility. Now, Monday morning, I am grateful to run across this draft of a post which reminds me of parents who've gone before and Redefined the Impossible...a future for kids.

Check out Berkshire Hills Music Academy, an incredible post-secondary school in a collegiate setting for young adults with disabilities to pursue their musical passion. Living in dorms with support, they learn life skills and academics in a music-infused curriculum. I love the sound of that! And the fact that they take it to the streets and perform in the community. How did it come to be? Parents founded it. Out of necessity, no doubt.


Another example you may have seen last month in Wired, is of Thorkil Sonne, a parent, who formed an IT consulting firm in Denmark called Specialisterne that trains employers how to maximize the unique talents and productivity of Aspies.

My friend, Jody Mlynek created Logan's Friends to help churches around the country be more inclusive. Her business was born through her experience starting a program to serve her own son, Logan.

Do you know others?

In most cases, a parent has the greatest motivation to ensure his child's future. Many fabulous tutors and therapists have circulated through our home, but you know what? They keep leaving to get married, have babies, or get Ph.D's. We remain. I was feeling the weight this weekend of having the kid only a mother could love. It's heavy. And I do. Undoubtedly, parents have the strongest love and most relentless pursuit for their kids' potential.

Indeed, our Father in Heaven has an undying hope for our future. Since He created us, knows us best, and delights in each of us, He is absolutely the one most inspired to prosper us, see that our joy is complete, and give us hope. His is the best plan of redemption for our permanent future: not a special school but a mansion with many rooms awaits. He went to great pains to get us there. He sacrificed a piece of Himself to make it possible. He designed Plan B when Plan A didn't work. He never leaves us or forsakes us.

What a role model. Parents rule. God reigns!


The hired hand is not the shepherd who owns the sheep. So when he sees the wolf coming, he abandons the sheep and runs away. Then the wolf attacks the flock and scatters it.
John 10:11-13


How great is the love the Father has lavished on us, that we should be called children of God! And that is what we are!
1 John 3:1-3


For nothing is impossible
with God. Luke 1:36-38

Friday, October 30, 2009

Hallow what?

Oh, how I hate Halloween.

It has little spiritual significance. It glorifies evil. From an autism perspective, the costumes present enormous sensory challenges. It is the ultimate exception to the rule about trespassing. And it causes cavities!

Nonetheless (like Barney) my kids covet it all the more because of my objections.

In years past, I have downplayed it by suggesting we go to the Harvest Festival at a local church, leave town, darken the house and take in a movie. I have told my teens they are old enough to pass out the candy at the door. All to no avail. The lure of a once-a-year binge on artificial coloring and high fructose corn syrup wins out every time. Will they ever outgrow this juvenile display of immediate gratification?

My most successful work-around has been the Great Candy Trade-In whereby I purchase the likes of Christmas gifts which they "buy" from me at the end of trick-or-treating so as to eliminate the toxic intake of sugar and dye but retain some sense of euphoria.

Annually, I procrastinate getting involved, hoping that I can avoid it this year. I find the neighbors' obsessions with ghouls and goblins, demented decorations and haunted patios more than a little disconcerting. At the eleventh hour though, I scramble to avoid embarrassment and be responsible for the only child at school without a costume. I cave, comply, conform. (Is this becoming a theme?)

Stubbornly resisting the status quo, but ever the dutiful mother down to the wire again, I texted Jim at Party City last night at 6pm: "get a wig for Reid to take to school"

He texted me back two choices: a Donald Trump or Florence Hendersen. As I deliberated (there must be a third option), this command arrived: "$15 should i get it or not"

He was surely next in line and famished. Party City is mobbed on October 29th at 6pm. I knew he was having his own crisis. Not there by choice, he had to buy black hair paint to impersonate Elvis Costello in order to fulfill his responsibility to participate in Costume Day at his office.

It is wonderful to be a united front and share so many critical moral stances with this man I've loved for 23 years. I can't decide what I love more, the fact that he hates Halloween as much as I do or that he will never consider Grecian Formula.

I passed on both wigs, saved 15 bucks, and put off the inevitable until this morning.

With the bus waiting at the curb, I threw a Zabar's apron and a chef's toque into Reid's backpack. He dressed in a flash donning his Whole Foods t-shirt. The tricky part was telling him what to say in reply to the perpetual question, "What are you?" I hastily told him to say he was a cook at Whole Foods. So lame. We can't be bothered.

Despite my Scrooge-like attitude, I have amassed some pleasant, if not amusing, Halloween memories which came flooding back to me as I wondered if Reid had heard anything I said. Now I feel like a Jehovah's Witness who doesn't celebrate birthdays but will remove the candles and eat my cupcake in an adjacent room.

There was the Chronicles-of-Narnia year when Reid wanted to be Mr. Tumnus--the half goat, half man Lucy first befriends. I put a little effort into finding tights, designing hooves, leathery ears; after all this brainstorm was literature-based! As darkness approached that night, Reid changed his mind proclaiming he'd be Edmund now.

A kid after my own heart! Easy cheesy! He stayed in plain clothes and I grabbed a faux fur pelt we'd stashed in a sensory bin. Off we went on a blue streak to as many houses as possible in the time allotted. Eventually the fur went by the wayside and Reid looked like himself. The friendly lady at the next house inquired on cue, "What are you?" Reid's reply, "I'm a boy."

There was the year we worked diligently to reinforce the "stay on the welcome mat" concept.

"Ring, but don't go in."

"Where do you wait?"

"Are you on the mat?" we chimed repeatedly.

He only entered the houses where television was on. Progress is certain; now he has it down pat.



There was the year we made a yellow sandwich board out of a retired science fair poster. Holes were hand drawn after dinner to imply SpongeBob. Totally pathetic, I know. And somehow impressive too, given our limited investment of time and thought.

There were several years, Allie wrangled me out to Target on October 28th or 29th to choose the least obnoxious of the picked over, store bought costumes. We have in our possession the absolutely tackiest, 200% polyester girl pirate, Cinderella, and ladybug costumes you've ever seen. All were purchased under duress in acquiescent desperation only after total avoidance had failed me.

There was the year Jim loaned his gigantic black afro wig to Reid at dusk.

There was the year I handed out gum because at least it offers proprioception.

There was the year I gave out raisins.

There will be a year I give out toothbrushes.

Every year, I recycle the candy collected and put it back out on the stoop by 8pm. True confessions.

Halloween; I'm just not that into it.